BeWell Blog

Spring Cleaning as a Spoonie

The birds are chirping, flowers are starting to bloom, and everyone's talking about spring cleaning. My social media news feed is flooded with before-and-after photos of tidy closets and sparkling kitchens. Meanwhile, I'm looking at...

Reflecting on International Women's Day: Honoring Women with Chronic Illness

International Women's Day, marked every year on March 8th, offers a time to commemorate gains achieved by women and look back on work still to be done. It's a day to recognize strength in every...

How to Advocate for Yourself in the Medical System – Lessons from the Rare Disease Community

The first time a doctor told me "it's probably just constipation/gas," I nodded and went home, thinking they must be right. A few doctors and many years later, I finally got my Crohn's diagnosis at...

Why Rare Disease Awareness Matters: How It Benefits the Whole Chronic Illness Community

I'll never forget the day my doctor finally put a name to what was happening to my body. After years of being told it was "just constipation/gas" or "all in my head," having a diagnosis...

Life is Short: Use the Markers

Growing up, I had this habit that I now recognize in so many others living with chronic illness - saving the "good stuff" for some perfect future moment that never quite arrives. The Story Behind...

Beyond Roses and Chocolates: Valentine's Gifts That Show Real Understanding

Finding the perfect Valentine's Day gift gets complicated when your loved one lives with chronic illness. After years of navigating this journey alongside warriors in our community, I've learned that the most meaningful gifts aren't...

Self-Love Isn't Selfish: A Chronic Illness Guide to Valentine's Day—With or Without a Partner

But in reality, the day of Valentine's may turn out to be pretty tricky once one has been dealing with some chronic illness. Perhaps on social media, one goes through all these couples all cute...

When Your Guard Goes Up: Being Defensive with Chronic Illness

We probably all have at once time or another been told we are being defensive. It usually has a negative connotation, so much so the person telling us is probably trying to make us back...

Love Languages When Life Gets Hard: Real Talk About Care & Chronic Illness

A week ago Tuesday, I sat with my friend Emily at her kitchen table. She was having one of her better days—enough energy to sit up and chat while her coffee got cold—something that always...