BeWell Blog

How to Advocate for Yourself in the Medical System – Lessons from the Rare Disease Community

The first time a doctor told me "it's probably just constipation/gas," I nodded and went home, thinking they must be right. A few doctors and many years later, I finally got my Crohn's diagnosis at...

Why Rare Disease Awareness Matters: How It Benefits the Whole Chronic Illness Community

I'll never forget the day my doctor finally put a name to what was happening to my body. After years of being told it was "just constipation/gas" or "all in my head," having a diagnosis...

Love Languages When Life Gets Hard: Real Talk About Care & Chronic Illness

A week ago Tuesday, I sat with my friend Emily at her kitchen table. She was having one of her better days—enough energy to sit up and chat while her coffee got cold—something that always...

Understanding Medical Gaslighting: What It Is and How to Respond

Written by: Amanda Phillips If you have lived with any type of chronic illness for any amount of time, there is a good chance that at one point or another, you felt your symptoms were...

How to Talk to Your Doctor About Unseen Symptoms

Written by: Amanda Phillips If you're living with a chronic illness, you know that some of the most debilitating symptoms aren't visible to the outside world. Whether it's fatigue, brain fog, or chronic pain, these...

Advocating for Yourself within the Health Care System

Written by: Amanda Phillips For one to have to deal with a chronic illness, it is absolutely overwhelming to find a way to deal with the healthcare system in general. All the doctor's appointments, the...