BeWell Blog
Beyond Visibility: Reframing Wellness Through the Prism of Disability Pride
Disability Pride Month is in July, and visibility is vital, but I just can't stop thinking about something more. What if we're not just asking to be included in wellness conversations—what if we're actually pioneering them? After decades of navigating...
How to Advocate for Yourself in the Medical System – Lessons from the Rare Disease Community
The first time a doctor told me "it's probably just constipation/gas," I nodded and went home, thinking they must be right. A few doctors and many years later, I finally got my Crohn's diagnosis at the age of 17. That...
Why Rare Disease Awareness Matters: How It Benefits the Whole Chronic Illness Community
I'll never forget the day my doctor finally put a name to what was happening to my body. After years of being told it was "just constipation/gas" or "all in my head," having a diagnosis – even not a rare...