BeWell Blog
How to Advocate for Yourself in the Medical System – Lessons from the Rare Disease Community
The first time a doctor told me "it's probably just constipation/gas," I nodded and went home, thinking they must be right. A few doctors and many years later, I finally got my Crohn's diagnosis at the age of 17. That...
Why Rare Disease Awareness Matters: How It Benefits the Whole Chronic Illness Community
I'll never forget the day my doctor finally put a name to what was happening to my body. After years of being told it was "just constipation/gas" or "all in my head," having a diagnosis – even not a rare...