BeWell Blog

Young child holding a striped zebra toy while sitting with an adult.

How to Advocate for Yourself in the Medical System – Lessons from the Rare Disease Community

The first time a doctor told me "it's probably just constipation/gas," I nodded and went home, thinking they must be right. A few doctors and many years later, I finally got my Crohn's diagnosis at the age of 17. That...

Read more

Zebra standing in golden sunlight across grassland, symbolizing rare disease awareness.

Why Rare Disease Awareness Matters: How It Benefits the Whole Chronic Illness Community

I'll never forget the day my doctor finally put a name to what was happening to my body. After years of being told it was "just constipation/gas" or "all in my head," having a diagnosis – even not a rare...

Read more

Organized drawer of colorful markers arranged in rainbow order within white storage container.

Life is Short: Use the Markers

Growing up, I had this habit that I now recognize in so many others living with chronic illness - saving the "good stuff" for some perfect future moment that never quite arrives. The Story Behind the Markers I remember the...

Read more

Raindrops and paper hearts decorate a window with warm sunset light streaming through.

Self-Love Isn't Selfish: A Chronic Illness Guide to Valentine's Day—With or Without a Partner

But in reality, the day of Valentine's may turn out to be pretty tricky once one has been dealing with some chronic illness. Perhaps on social media, one goes through all these couples all cute and stuff, while you are...

Read more

Glowing lantern illuminates a dim interior space at dusk, symbolizing clarity and light in darkness.

Understanding Medical Gaslighting: What It Is and How to Respond

Written by: Amanda Phillips If you have lived with any type of chronic illness for any amount of time, there is a good chance that at one point or another, you felt your symptoms were not taken seriously by a...

Read more

Elegant holiday dining table with dried flower centerpieces and place settings in a bright kitchen.

Managing Stress and Fatigue During the Holidays with Chronic Illness

Written by: Amanda Phillips While the holiday season is a time of grand celebration, family gatherings, and holiday traditions, for those of us with chronic illnesses, holidays bring added stress, extra exhaustion, and symptom management as we attempt to keep...

Read more

Woman writing notes at a desk while preparing to discuss health concerns with her doctor.

How to Talk to Your Doctor About Unseen Symptoms

Written by: Amanda Phillips If you're living with a chronic illness, you know that some of the most debilitating symptoms aren't visible to the outside world. Whether it's fatigue, brain fog, or chronic pain, these "unseen" symptoms can take a...

Read more

Two women having a conversation in a bright room with plants, discussing health care advocacy.

Advocating for Yourself within the Health Care System

Written by: Amanda Phillips For one to have to deal with a chronic illness, it is absolutely overwhelming to find a way to deal with the healthcare system in general. All the doctor's appointments, the insurance issues, complicated treatments-it's just...

Read more

Colorful awareness ribbons in orange, purple, blue, and pink arranged on a table with people gathered in the background.

A Guide to Awareness Ribbon Colors

Written by: Amanda Phillips Living with a chronic illness or being thrown into the chaos of a cancer diagnosis, one knows how much life may change. Been there, done that, and though the journey is not easy, some of the...

Read more

Woman sitting on hospital bed looking upward, wearing medical gown with IV line visible in dimly lit medical room.

Understanding PTSD from Medical Trauma: Overcoming the Triggers

Written by: Amanda Phillips While many people immediately associate PTSD with veterans or survivors of harrowing events, it is also connected to medical trauma. Many patients with chronic illnesses, cancer, or those who have undergone extensive medical treatments can develop...

Read more

Woman reviewing medical documents at a desk with warm lighting, preparing to advocate for herself in healthcare.

How to Advocate for Yourself within the Health Care System

Navigating the healthcare system itself is always quite overwhelming, especially if one tries to handle a chronic illness in the process. With doctor appointments, treatment plans, and all of that endless medical jargon, it's easy for anyone to get lost...

Read more